On a quest for answers?

[Charlie]

After not finding the reason or cause I went on a bit of mission to try and solve the mystery myself. I'm not much of a Miss Marple since my quest was unsuccessful but I did come across a few clues along the way. I compared notes with other Daisy members, went for heaps of tests and a few of us shared common medical histories. I have other autoimmune issues like vitiligo but does that really mean that I will now suffer from all manner of autoimmune problems or is this a side effect of something else? Not enough research has been done but I question everything now and don't discount the volume of antibiotics prescribed to me as a child nor other gyne issues which I experienced over the years. After a while I had decided to stop being a paranoid wreck and acknowledge that I had to just get on with things until recently.....

My sister who doesn't have this condition but 2 x children who have different health issues of their own decided to start her own quest to see if there is a genetic link common throughout. We have both had the fragile X check etc which were fine but there are other chromosomes which can be damaged / inherited etc.. I am waiting for outcomes before I post anymore but want to see if there are more to genetic links than currently documented or if other external factors have caused this. Perhaps I did it to myself somehow :'(

Anyways the more we share about suspected causes and the more common the links, this will help us build a case to help further research. If this forum takes off and people feel the same, we could start a poll or survey.

Any thoughts?

[Sarah]

Hi Charlie
I am the only member of my family to go through a premature menopuase. As far as I know I dont have any auto immune diseases. I dont smoke and hardly ever drink. Ive always looked after my body, exercised, maintained ahealthy weight and eaten healthy foods. The only thing I can think of was that for 3 years leading up to my premature menopause I was under tremendous stress due to family circumstances outside my control, studying for a post grad and a cert ed whilst teaching full time.

Wishing you all the best with your search for answers and peace of mind
Sarah

[Janey]

Hi,

My sister has two healthy children but my mother had early menopause at 45. Sadly my mother never mentioned this before I asked during my diagnosis. The literature I have read does not state if this is a direct link to POF. I am quite angry as it has been 8 months of tests and waiting. I believe it started years ago and questioned the doctors but no clear answers. I was under a lot of stress for a few years as well as having bilary colic last year, eventually had my gallbladder removed June last year. I though the side affects of POF were related to my gallstones as I was very ill for such a long time. I asked the doctor about the link between gallstones, oestrogen and cholesterol, but she did not think they were linked. I've also had a history of a breast fibroid and a cyst. It just seems strange to me that they are not linked to a hormonal imbalance.